@neurotraveleu | @bnwhelsinki
personal & travel | b&w project

About Me

My name is Ilkka, I’ve born 1981 and I love traveling, flying, and photographing.

I have suffered from several health problems since December 2016, including temporary loss of sensation on the whole left side of my body, chronic dizzyness/disorientation, daily burning sensations in my head, muscle weakness (legs & arms) and coordination problems.

Also equipped with severe depression, type 1 diabetes, autonomic neuropathy, retinopathy, polyneuropathy and as the latest feature, a Charcot Foot which has put me to the wheelchair since June 2019.

In January / February of 2020 I got a permission to walk, and that I did, slowly and carefully. However, it took only two weeks for the Charcot Foot’s comeback, and as a result I got to experience an ambulance and a hospital in Reykjavik, Iceland AND in Helsinki, Finland right away when I came back.

After an MRI it was clear, the Charcot Foot’s infection state had restarted, and as a result basically the whole center of the foot (still the same foot) had crushed. Involving a necrosis in the navicular bone. So, back to the wheelchair. As of 09/2020, the pain attacks remain and in the latest MRI the Charcot is still fully active.

Waiting now for the inevitable (at least how I think) amputation of the foot, but let’s see what happens. It’s a fucking waiting game. Forever and ever.

Starting the wheelchair trips

The first trip with the wheelchair (to Riga, Latvia) was a massive workload on me, but since I managed to have it done, I continued my journeys. So in addition to Riga, I’ve rolled with my wheelchair in…

These all have been done with a manual wheelchair. In addition there was that Reykjavik, Iceland trip in January 2020, but that was done without a wheelchair. OK, I did have to go with a wheelchair at Keflavik Airport when I was coming back to Finland with the foot swollen & ketoacidosis making it’s way back.

Anyway, by documenting my trips, my goal is to encourage others with health and/or mobility issues to travel and see the world.

Lyme’s disease status

In the beginning of February 2020 I also got the checkup lab results regarding my Lyme’s disease and everything related to it. The labs were good, because of the 16 most important results, only 4 were significantly bad. In the initial labs 3 months backwards, there were 11 bad rows in the 16 results.

So the antibiotics are working, I can actually see some progress in my symptoms, and now it’s time to see how well can I get my heath back. Of the 10+ symptoms the most are still there, but one of the worst ones — the intensive burning sensation inside my head — is almost totally gone when I try to do some coding / work-related things! So maybe some hope in there..

UPDATE 09/2020: The antibiotics have ended, and the final lab results (at least for now) have arrived. There is still traces of Lyme’s in the results, but dramatically less than in the initial lab results. So, maybe the antibiotics have done their job, and now it’s a question of when can I expect to have the Charcot Foot’s 24/7 pain killers away so that I could start to have an understanding where we are with the Lyme’s symptoms.

Todo list

In my lifetime I’ve been on over 200 flights, and the aviation enthusiastic in me is kind of keeping books of things. I still want to have these models and countries experienced.

Aircraft models

  • Airbus A380
  • ATR 72-600
  • Boeing 747
  • Boeing 767
  • Boeing 777
  • Boeing 787
  • Embraer E-Jet 2-family

Countries

  • Australia
  • Brazil
  • China
  • Czech Republic
  • Egypt
  • Hungary
  • Ireland
  • Japan
  • New Zealand
  • Slovakia
  • South Korea
  • Switzerland
  • USA