@neurotraveleuTravelVideosHealth
SuomeksiHelsinki B&W

Mielipiteitä kaiken paskan keskeltä

Ilkka on ollut työkyvyttömänä 2017 lähtien. Ystävämme Borrelioosi, Anaplasmoosi, Bartonella ja Yersinia diagnosoitiin vihdoin 3 vuoden kohdalla, ja nyt seuraillaan miten lääkitys toimii. On toiminut jo osin, mutta pitkä matka vielä.

Lisäksi ykköstyypin diabetes ja kahteen kertaan murskaantunut Charcotin jalka, jolla ei enää koskaan kävellä normaalisti -- eteneminen tällä hetkellä (sähkö)pyörätuolilla. Tämän 3,5 vuoden aikana kehittyneen vaikean masennuksen myötä paketti on kasassa.

Siispä mielipiteitä ja ajatuksia, koska jonnekin ne pitää purkaa. Sitä samaa mitä kaikki muutkin. Yhy. Ajoittain toki muutakin, usein ykköstyypin diabetekseen liittyen. Joo, pyörittelen paljon ykköstyypin diabeetikoiden juttuja, mutta olen muutakin.

10 Tips for Solo Wheelchair Travelers

I’ve been on a wheelchair for a couple of months now, and will be using it for at least the next several months, depending how my Charcot foot does it’s healing (if there ever is such). During this time I’ve been on three solo trips in Europe: Latvia, Croatia and Greece. Short background I COULD walk, but as all of the toes in the right foot are fractured in addition to damage on top of the foot, I’m operating on strict non-weight-bearing instructions. There’s bone material trying to push...

Continue reading

My Airport Tips for a Newbie Traveler

If you’re just starting your traveling and are not yet familiar with the little worlds every Airport has inside it, here’s a few tips for you to make your travel experience smoother. Be Always On Time Do An Online Check-In Speed Up The Security Check At The Gate In The Plane 1. Be Always On Time Is there anything more annoying than missing your flight? Yes, there is. The people who miss their flights just because of poor time planning around the flights part of the trip. You should...

Continue reading

Project X (in Finnish)

Suomenkielisille lukijoilleni pala purtavaksi, koskien terveysongelmiani joille ei vieläkään ole lopullisia diagnooseja olemassa (koko rumba alkoi 2016 joulukuussa). On epäilty MS-tautia, borrelioosia ja kaikenlaista muuta, tehty satoja labrakokeita (veri, virtsa, likvor), useita muita testejä, kokeiltu erilaisia lääkkeitä ja nähty eri alojen lääkäreitä, eikä vieläkään ole päästy lopulliseen ratkaisuun. Joten annan tässä nyt avoimesti teille luettavaksi sekä tuollaisen karkean aikajanan oire- ja sairaalakäyntikuvauksineen josta selviää miten asiat ovat edenneet, että kaikki labratulokset mitä Kannasta löysin näiden lähes kolmen vuoden ajalta OK, vähän karsin turhia diabetesliitännäisiä arvoja sieltä, vielä saattaa olla...

Continue reading

Back in Physiotherapy

Last Tuesday I was finally back in physiotherapy, and it felt both good and heavy, the latter one especially for my legs. We toured the gym excluding devices I can’t use because of the fractured Charcot foot. All in all 5 devices were used, three for arms, two for legs. The main reason I’m in the wheelchair is that I don’t have the muscles (in my arms) to have my Charcot foot totally non-weight-bearing with crutches. Then again my weak arm muscles cause the rolling with the wheelchair to...

Continue reading

Latvia: Riga & Jurmala

My trip to Riga, Latvia (RIX / EVRA) started on Monday August 12th from Helsinki Airport (HEL / EFHK). This was the first time I had booked a flight with airBaltic, and would say that the booking process was a smooth operation. I intentionally booked flights I knew were flown with aircraft models I’ve not yet been in (Q400 and A220/CS300). Since this was also the first trip with my wheelchair, I filled out the “Request Assistance form” on their site to let the airline know that I have...

Continue reading

All of the Metatarsal Bones are Fractured

Some new details from my first Charcot Foot checkup has emerged a bit afterwards. Instead of having just one metatarsal bone fractured, actually all of the five metatarsal bones on the Charcot Foot are fractured and deformed. The fractures are located at the bases of all of the metatarsal bones, so quite a widespread damage. Keeps me even more motivated to comply with the non-weightbearing guidelines when moving around. And on the other hand now I understand why the doc wasn’t optimistic about getting off the wheelchair this year. While digesting this detailed...

Continue reading

On the Bathroom Floor

Today I finally took a long shower while sitting on the bathroom floor for the first time, since I didn’t have the strength to keep myself up and conform to the non-weightbearing requirements simultaneously. Took a wooden sauna bench with me to the floor, just to use it to get down and up again so that the Charcot foot keeps clear of any pressure or bad positions. Maybe it’s time to consider an actual shower chair, since the situation is not going to be improving in at least half...

Continue reading

The First Checkup of my Charcot Foot

About a month ago I was diagnosed with Charcot Foot (the right one), the condition which causes bones to fracture inside one’s foot, thus leading to foot malformation. Last week the foot was x-rayed, and today I had an appointment with the doctor to hear the results. Actually I aso saw the results, and it wasn’t pretty. The Charcot process is highly active and ongoing, so no healing or ossifying yet. Blood circulation in the foot is overly active because of the inflammation caused by the Charcot process. There...

Continue reading

My First Week+ with a Wheelchair

After getting the Charcot Foot diagnosis, I went and got myself a wheelchair, so now I have crutches & the wheelchair. The first few days were kind of getting mentally used to the idea of having to use it continuously for an unknown period of time. A period which is most likely going to be from several months to a year or so. While doing the brainwork, I did a couple of rounds with the chair outside, at the backyard and around the house, testing how consuming it is for...

Continue reading

Word of the Day: Non-Weight-Bearing

So last Tuesday I got diagnosed with Charcot foot, after a few weeks of (new) problems with the right foot — swelling, colorizing (red), an enormously loud BANG while walking and a tilted & aching foot after that. Lots of Charcot patients are diabetics since it usually is preceded by neuropathy, which also is a diagnosis saturated by diabetics. “I also have osteopenia, the precursor to osteoporosis.” Neuropathy again is a non-curable state where the patient’s sensation is decreased, resulting in difficulty detecting touch, temperature or pain — usually in the legs. My diabetes is the autoimmune one (Type 1...

Continue reading