Health Updates

  • Vienna cancelled & no amputation yet! March 14, 2020 Vienna cancelled & no amputation yet! I was supposed to fly to Wien, Austria on March 30th with Lauda, but that got cancelled by Lauda because of the coronavirus (I suppose). However I was able to just change the dates of the trip for no extra fee, so now it’s scheduled to be happening in the end of June. Waiting eagerly, since I‘ve been twice in Austria but not yet in the city of Wien. The earlier trips have been to Salzburg (a very nice place, I do recommend!). No trips to elsewhere either now in the next few months, just because the coronavirus threat. I would be ... Continue reading...
  • Back to the Wheelchair (and a bit of Iceland) February 25, 2020 Back to the Wheelchair (and a bit of Iceland) Today I got home from the hospital, where I’ve been for a week. Vatjanökull It all started during my trip to Reykjavik, Iceland, where I landed with an Icelandair B757 on Thursday 13th of February. During Thursday and Friday there really was nothing to do outside, since the storm winds started to be violent in Reykjavik. So after all of the hurricane force wind warnings, cancelled tour activities etc in the area, I really didn’t get out of the hotel(s) until Saturday. Street art nearby Laugavegur And on that day, I walked the litte shopping street of Laugavegur. Had some very tasty local lamb ... Continue reading...
  • Progress regarding my Lyme’s February 10, 2020 Progress regarding my Lyme's EDIT: The Lyme’s doc called and went through my results. As expected, I interpreted them correctly, and now we’re continuing with phase 2/3 of the meds (basically the same set). Of course there will still be the just-to-be-sure labs in Finland so that we follow the kidneys/liver in case they start to overreact to the antibiotics. Some exciting times regarding my Lyme’s disease. Had my blood sent from Finland to Germany in the end of January, and got the results a few days ago. Still going to have the doc explain everything to me, but here’s what I can tell about them ... Continue reading...
  • Finally some sanity January 28, 2020 Finally some sanity I had my latest Charcot checkup today, and it was a good one. No surprise there, because this appointment was not with the dimwit amateur muppet from the last clinic. So I finally have clear instructions what to do with the charcot foot. It goes like this: I really can begin passing weight for the foot I’m allowed to walk without the cast Preferably 2 crutches, not 1 As a target, full weight for the foot within February So it turns out that part of the earlier cuckoo’s instructions were correct, and now that I have a confirmation from a sane person, I’m going to follow ... Continue reading...
  • The Story of the Foot January 23, 2020 The Story of the Foot The story of my five-point-fractured Charcot Foot is continuing next week, when I’m going to the next specialist at a different surgical hospital here in Helsinki. Since my doctor at the previous clinic (in Espoo) was so clearly an amateur with her childish and rude behaviour, I do have to have a second opinion on what I should do with the foot in the near future. Of course it might be, that the amateur doc is correct with her instructions, but since I have absolutely no points of trust in that person, it’s a must to have that second opinion before proceeding ... Continue reading...
  • [FI] Hei hei, Espoon Diabeteskeskus January 14, 2020 Viimeinen käynti Espoon Diabeteskeskuksessa on ohi, ja mieli hyvillä koska enää ei tarvitse käydä lääkäri ***** T********n pakeilla. Siinä missä saman hoitopaikan diabeteshoitajista ja jalkahoitajasta ei ole pahaa sanottavaa, kerää ko lääkäri ihan jo omalla töykeällä käytöksellään, virnuilullaan ja potilaan ongelmien vähättelyllä runsain mitoin pisteitä vuosituhannen nuijimpien lääkäreiden taistossa. Tätä on nyt tullut katsottua kolme kertaa, ja harmikseni en tätä viimeisintä nauhoittanut puhelimella koska siinä varmasti olisi syyllistytty jonkinlaiseen laittomuuteen. Harkitsin kyllä vakavasti, ihan vain aiempiin kokemuksiin perustuen. Tämän käynnin antina oli jonkin verran asiallista puhetta, vaikka ko lääkäri varmasti olisi halunnut päästää lopustakin järjestä irti mm. siinä vaiheessa kun alkoi vähättelemään borrelioosiani, ... Continue reading...
  • Progress and Pain January 5, 2020 Progress and Pain It’s 2020 now, and time to update you with what’s happening regarding my health. Lyme’s disease The medical treatment to Lyme’s disease has now been on for over 6 weeks (or is it already 7..), and things have finally made some progress. The medication consists of a bunch of supplements, and 3 antibiotics: Azithromycin is an antibiotic used for the treatment of a number of bacterial infections. This includes middle ear infections, strep throat, pneumonia, traveler’s diarrhea, and certain other intestinal infections. Doxycycline is an antibiotic used in the treatment of infections caused by bacteria and certain parasites. It is used to treat bacterial pneumonia, ... Continue reading...
  • [FI] Osa 2: Avoin kirje HUS:n henkilöille jotka päättävät insuliinipumppujen myöntämisistä November 26, 2019 [FI]  Osa 2: Avoin kirje HUS:n henkilöille jotka päättävät insuliinipumppujen myöntämisistä Tätä avointa kirjettä saa jakaa esimerkiksi Facebookiin. Lue avoimen kirjeen ensimmäinen osa täältä. Avoimen kirjeeni jälkeen tilanne keinohaimatoiminnolla varustellun pumpun anomisessa on edennyt käytännössä vasta tällä viikolla, seuraavasti. Pyysin Espoon Diabeteskeskukselta sekä syitä pumppuanomukseni eväämiseen, että yleisiä “yhteisiä” kriteereitä joita pumppujen myöntämisessä käytetään. Kertauksena edellisestä kirjoituksesta, suullisesti minulle on tarjottu lukuisia random syitä miksi en voi saada kyseistä pumppumallia, mukaanlukien etten ole lapsi ja etten hyötyisi pumpusta. Pyyntööni eväämissyistä sekä yhteisistä kriteereistä vastattiin vain jälkimmäisen osalta, sähköpostitse seuraavasti. Lähtökohtaisesti uudet pumpun aloitukset peruspumpuilla Rinnalle sensorointi Librellä tai hälyttävällä sensorilla ensimmäisten kuukausien ajan (klinikalta sensorit). Jos ei tunnista hypoja tai on ollut vaikeita hypoja, hälyttävä sensori. Pumppuhoidolla pääosalla saadaan ... Continue reading...
  • Augsburg, Germany: FINALLY a Diagnosis! November 22, 2019 Augsburg, Germany: FINALLY a Diagnosis! Within about one month, I’ve been flying from Finland to Germany a couple of times solely in matters regarding my health. By using one of my new top 5 favorite airlines, AirBaltic, the journeys have been with 1 stop flights via Riga, Latvia. Everything on the flights has worked fine, and I think that I love the A220 planes they have :). An AirBaltic A220 in Munich Private Drivers On the first trip I got myself from Munich Airport to Augsburg with trains (Deutsche Bahn), which takes about 1,5 hours with a change at Munich Hauptbahnhof. However, because of my deteriorating health and energy, I ... Continue reading...
  • Needles, Borrelia and Charcot November 7, 2019 Needles, Borrelia and Charcot It’s been a while since my last health update in English. so here it is. The pic above is from my previous flight to the borrelia clinic in Germany (it’s some part of Munich in the pic). There’s lots of things happening in two fronts — my original and still ongoing daily (probably) neurologic problems, and my Charcot foot (the fractured one caused by Type 1 Diabetes). I decided to launch a new probe to my original, main problems, which include but are not restricted to: Burning sensation in my forehead (between my temples) Severe concentration problems because of that ^ Muscle weakness in legs ... Continue reading...