Next tripsRuka, Lapland (Nov '19)
Augsburg, Germany (Nov '19)
Berlin, Germany (Dec '19)
193 days soberSince April 30th 2019
Success rate 98%
Failed days: 4
11 days smoke freeSince Nov 2nd 2019
Success rate 100%
Failed days: 0

Health Updates

  • Needles, Borrelia and Charcot November 7, 2019 Needles, Borrelia and Charcot It’s been a while since my last health update in English. so here it is. The pic above is from my previous flight to the borrelia clinic in Germany (it’s some part of Munich in the pic). There’s lots of things happening in two fronts — my original and still ongoing daily (probably) neurologic problems, and my Charcot foot (the fractured one caused by Type 1 Diabetes). I decided to launch a new probe to my original, main problems, which include but are not restricted to: Burning sensation in my forehead (between my temples) Severe concentration problems because of that ^ Muscle weakness in legs ... Continue reading...
  • (FI): Avoin kirje HUS:n henkilöille jotka päättävät insuliinipumppujen myöntämisistä November 5, 2019 Tätä avointa kirjettä saa jakaa esimerkiksi Facebookiin. Kirjoittajasta: Ilkka Koski on 38-vuotias ykköstyypin diabeetikko, jonka diabetes puhkesi vuonna 1998. Ilkalle on ehtinyt kertyä ykköstyypin diabetekselle ominaisia lisäongelmia, mukaanlukien (muttei rajoittuen) lukuisia laserointeja vaatineet retinopatiat molemmissa silmissä, autonominen neuropatia, polyneuropatia (pysyvä tunnottomuus jaloissa), Charcotin jalka (jalkapöytä ja varpaat tällä hetkellä murtuneet), aallottainen hoitoväsymys, urologiset ongelmat ynnä muut. Ilkka on terveysongelmistaan huolimatta aktiivinen yhdistysrintamalla ja on tätä kautta tavannut sadoittain ykköstyypin diabeetikoita, eläen myös arkeaan ykköstyypin diabeetikkojen saturoimassa sosiaalisessa ympäristössä. Tämä avoin kirje / mielipidekirjoitus edustaa kuitenkin vain ja ainoastaan Ilkan henkilökohtaisia mielipiteitä, kokemuksia ja tunteita, ei siis minkään organisaation, yrityksen, yhdistyksen, liiton, ryhmän tai ... Continue reading...
  • Project X (in Finnish) August 29, 2019 Project X (in Finnish) Suomenkielisille lukijoilleni pala purtavaksi, koskien terveysongelmiani joille ei vieläkään ole lopullisia diagnooseja olemassa (koko rumba alkoi 2016 joulukuussa). On epäilty MS-tautia, borrelioosia ja kaikenlaista muuta, tehty satoja labrakokeita (veri, virtsa, likvor), useita muita testejä, kokeiltu erilaisia lääkkeitä ja nähty eri alojen lääkäreitä, eikä vieläkään ole päästy lopulliseen ratkaisuun. Joten annan tässä nyt avoimesti teille luettavaksi sekä tuollaisen karkean aikajanan oire- ja sairaalakäyntikuvauksineen josta selviää miten asiat ovat edenneet, että kaikki labratulokset mitä Kannasta löysin näiden lähes kolmen vuoden ajalta OK, vähän karsin turhia diabetesliitännäisiä arvoja sieltä, vielä saattaa olla mukana muiden kuin näiden ongelmien käyntien labroja, mutta eipä se haittaa. Tästä pääset aikajanaan/oireisiin Tästä pääset ... Continue reading...
  • Back in Physiotherapy August 29, 2019 Back in Physiotherapy Last Tuesday I was finally back in physiotherapy, and it felt both good and heavy, the latter one especially for my legs. We toured the gym excluding devices I can’t use because of the fractured Charcot foot. All in all 5 devices were used, three for arms, two for legs. The main reason I’m in the wheelchair is that I don’t have the muscles (in my arms) to have my Charcot foot totally non-weight-bearing with crutches. Then again my weak arm muscles cause the rolling with the wheelchair to be mainly slow, except downhills ;), so no real winners here. Before the summer ... Continue reading...
  • All of the Metatarsal Bones are Fractured August 8, 2019 All of the Metatarsal Bones are Fractured Some new details from my first Charcot Foot checkup has emerged a bit afterwards. Instead of having just one metatarsal bone fractured, actually all of the five metatarsal bones on the Charcot Foot are fractured and deformed. Pic: Wikipedia The fractures are located at the bases of all of the metatarsal bones, so quite a widespread damage. Keeps me even more motivated to comply with the non-weightbearing guidelines when moving around. And on the other hand now I understand why the doc wasn’t optimistic about getting off the wheelchair this year. While digesting this detailed data, I’ve ended up with the realization that we have to move to ... Continue reading...
  • On the Bathroom Floor August 4, 2019 On the Bathroom Floor Today I finally took a long shower while sitting on the bathroom floor for the first time, since I didn’t have the strength to keep myself up and conform to the non-weightbearing requirements simultaneously. Took a wooden sauna bench with me to the floor, just to use it to get down and up again so that the Charcot foot keeps clear of any pressure or bad positions. Maybe it’s time to consider an actual shower chair, since the situation is not going to be improving in at least half a year. If you’ve missed the update on my first Charcot foot checkup ... Continue reading...
  • The First Checkup of my Charcot Foot July 30, 2019 The First Checkup of my Charcot Foot About a month ago I was diagnosed with Charcot Foot (the right one), the condition which causes bones to fracture inside one’s foot, thus leading to foot malformation. Last week the foot was x-rayed, and today I had an appointment with the doctor to hear the results. Actually I aso saw the results, and it wasn’t pretty. The Charcot process is highly active and ongoing, so no healing or ossifying yet. Blood circulation in the foot is overly active because of the inflammation caused by the Charcot process. There are segments of crushed bone in several areas, and if I got it correct, ... Continue reading...
  • My First Week+ with a Wheelchair July 11, 2019 My First Week+ with a Wheelchair After getting the Charcot Foot diagnosis, I went and got myself a wheelchair, so now I have crutches & the wheelchair. The first few days were kind of getting mentally used to the idea of having to use it continuously for an unknown period of time. A period which is most likely going to be from several months to a year or so. While doing the brainwork, I did a couple of rounds with the chair outside, at the backyard and around the house, testing how consuming it is for the arms. And yes, it really was and is consuming. Felt totally exhausted already ... Continue reading...
  • Word of the Day: Non-Weight-Bearing July 1, 2019 Word of the Day: Non-Weight-Bearing So last Tuesday I got diagnosed with Charcot foot, after a few weeks of (new) problems with the right foot — swelling, colorizing (red), an enormously loud BANG while walking and a tilted & aching foot after that. Lots of Charcot patients are diabetics since it usually is preceded by neuropathy, which also is a diagnosis saturated by diabetics. “I also have osteopenia, the precursor to osteoporosis.” Neuropathy again is a non-curable state where the patient’s sensation is decreased, resulting in difficulty detecting touch, temperature or pain — usually in the legs. My diabetes is the autoimmune one (Type 1 Diabetes), and I’ve had neuropathy for years already (I’m 38 atm). I also have osteopenia, the ... Continue reading...